Marfan syndrome impacts an estimated 1 in 5,000 individuals no matter race, ethnicity, or gender, and consultants estimate that almost half the individuals who have Marfan syndrome have no idea it. With out correct analysis and therapy, they’re at excessive danger for an aortic dissection and sudden loss of life.
Consciousness of Marfan syndrome and associated circumstances results in early analysis, therapy, and an prolonged lifespan. Probably the most highly effective means we will elevate consciousness is thru you, our volunteers. Your circles of family members, associates, co-workers, and neighbors, your information, your private journey, and your dedication can’t be matched by anybody exterior of our neighborhood.
February is Marfan Consciousness Month and you are able to do your half from the consolation of your personal residence on social media. Be a part of America’s Charities and our member, The Marfan Basis, by collaborating within the #MarfanAwareness throughout February.
- Give via your office: You’ll be able to make a major distinction by donating via office giving. Examine together with your employer to see if they are going to double your donation with an identical reward. Don’t have a program? Click on right here to have your employer contact our workforce about carry worker giving to your office.
- Elevate aweareness: Assist The Marfan Basis elevate consciousness about Marfan syndrome by utilizing the library of ready-to-use social media graphics right here.
- Educate Your self: This month, The Marfan Basis has two webinars on the fundamentals of Marfan syndrome. On February 9, we’ll deal with medical administration with two members of our Skilled Advisory Board, Dr. Shaine Morris, pediatric heart specialist, Texas Youngsters’s Hospital, and Dr. Chris Malaisrie, aortic surgeon, Northwestern Medication (register right here). Then, on February 16, we could have a Private Views Panel with members of the Marfan neighborhood speaking about how they coped when first recognized. (register right here).
There are numerous methods so that you can participate in Marfan Consciousness Month and each little bit helps. Click on right here for a listing of extra methods to assist The Marfan Basis.